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Bipolar and PDD - A Brother's Story

posted January 17, 2007 - 5:40pm
Bipolar and PDD - A Brother's Story

David is 14 and a big brother. He’s a good big brother. His little brother Jim is 11 and was diagnosed with Bipolar Disorder and Pervasive Developmental Disorder (PDD). Most people have heard of Bipolar even if they really don’t understand it, but fewer have heard of PDD. By now, David could probably you as much about them as any therapist. In fact he could tell you far more, because most therapists don’t watch their little brothers become hostage to them.

A textbook definition reveals that bipolar disorder used to be called manic-depression, but was renamed to more accurately reflect the fact that not just elation and sadness, but anger and calm, sociability and solitude, and a whole range of polar emotions are affected by the condition. PDD is defined as a range of conditions that include some with only a few features of autism on one end, to classic autism on the other. To a layperson, Diagnosing somebody with one of these conditions can be hopelessly confusing because the range of symptoms for one can seem almost identical to the symptoms of another. “Almost” is the key word; testing is often required to find where the “almost” is.

David has a general understanding of these definitions, but he knows so much more. He knows that his little brother will love him unconditionally right before he tries to hit him in anger. He loves Jim and protects him, but later wishes they never met. David knows his parents love him, but feels forgotten when they spend two hours trying to get control of Jim’s out-of –control behavior. He knows those times when they have a good time together and then go back to their own interests are far and few between the times when Jim follows him like a shadow, wanting his undivided attention. If left alone, Jim will hug him every minute or two for hours and stay within a foot of him. He doesn’t want to hate Jim, but he wants to scream at him to get away.

David is sociable by nature. As a result, he has a stream of friends always calling or knocking on the door for him. Not surprisingly, he feels good to know he’s liked. He’ll share his friends with Jim, only to watch him get angry if he wants to be alone with them. He knows his friends may get tired of Jim’s constant need for physical contact. He tries to prepare them for it but they’re still kids with their own needs, and constant hugging from Jim isn’t one of them.

Deep down, David knows his parents are trying to balance his and Jim’s needs, but often, it doesn’t seem like they’re succeeding. He becomes angry and fights with them about it, calms down, feels guilty and reconciles. The next day or even a few hours later, Jim’s bipolar and PDD gatekeepers take over and the cycle starts all over again. David just wants to scream and get out of there, get out and be among his friends where he can put this behind. He’ll want to meet them at the mall, downtown or even the high school, anywhere but home. If he’s home and doesn’t want hear any more, he takes refuge in his bedroom. There with his computer, he joins the cyberworld of his friends through Myspace and AIM.

David has the ability to do whatever he wants and he knows it. It’s not a conceit; it’s the simple knowledge that when he tries, he can do things better than almost anybody he knows. It’s the knowledge that when he was eighteen months old, he took apart and reassembled his grandma’s phone. It’s the knowledge that when he was ten, he figured out how to hotwire his parents car without anybody having taught him how to do it. It’s the knowledge that two years ago, his school placed him in an elite art class while other students had to compete for limited spots.

He knows that the parts of his brain that control those functions blessed him with almost unlimited potential. But the parts of his brain that allow him to love his family and care about his little brother have seemingly blessed and cursed him. A life without the ability to love and care is an empty one. He need not worry; in that way he is blessed.

Despite the turmoil he sees, he shows the deepest love and caring at the most unexpected times. Times come along when his parents are utterly worn down from Jim’s disorders. David changes from a boy to a man and steps in, calming Jim down when we think it can’t be done.

But he’s still a 14 year-old trying to understand and discover life for himself, who doesn’t yet have the experience to have wisdom. His love for Jim and his family can drain him and leave him at a loss. He’ll wonder why the people he loves don’t seem to show their love to him on demand like they do to Jim. Try as he might at those times, he can’t understand. But when they protect and help him, he gets angry because they love him too much. He loves his little brother. In fact he loves being a big brother. So why does he love Jim one minute and hate him the next? He lives in the eye of a storm and wonders if anybody knows it.

A lot of attention is given to the kids who have these developmental and behavior disorders, and that's the way it should be. Perhaps though, a little more has to be paid to the kids on the sidelines, the brothers and sisters who are labeled as normal and expected to behave that way, despite the heavy burdens of suffering both from and for their disabled siblings.

When things are calm David knows he’s loved, but might not know how deeply. His parents are close by and think about him constantly, but the simple fact of Jim’s bipolar disorder and PDD steal time they would otherwise share with him. He knows that, but it’s hard to remember when the storm surrounds you. His parents know and he knows he has a bright future if they can handle the tumultuous present. Sometimes, that seems impossible to David. He sometimes needs to say that aloud to them. But they owe it to David to never say “impossible” to him nor themselves. They need to believe anything is possible for him and to tell him that on those times when he can’t tell himself. They need to guide him through the storm.

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Comments

Thanks Les, for sharing both

Thanks Les, for sharing both your compassion and your experiences with me. I really do appreciate it. thewonderer

Maybe this posting will stay on here?

I do not know how my post to you in relation to this, your xombyte, "disappeared," and maybe that is better, but it does not change the message I was attempting to send to you. My message was one of human compassion, but also an attempt to reflect on the future of this and similar situations. I extend compassion from me, to you. I do have both knowledge, and a bit of experience in the realm of what is happening with respect to the situation you describe. I extend this compassion from one who had an incident of this disorder in an indirect family line, an uncle, some 12 or 13 years older than I. (I am reasonably certain, and hopeful, that none of the disorder in a communicable fashion was genetically spread elsewhere in the larger ‘family’.) In my uncle, the disorder was NOT recognized as a clinically diagnosable disorder because in those days we were still very much in our early “Stone Age of Mental Health-years.” Since that time, I have seen numerous instances in the families of colleagues, none in relatives since then. But I have medical relatives and we have reconstructed some of the past and discussed our uncle from a medical and mental health visiage. The situation for my uncle was a much longer, less severe and gradual developmental situation than you describe for Jim. It seems that it was to happen in a ‘mature’ person, my uncle, who was serving in the Navy and was discharged as much as a result of his developmental personality deterioration and disintegration as anything that happened as a result of behavior. It was classical manic depressive, (He was dishonorably discharged. In those days, just after the Korean Armistice, we are then still in the actual pre-Stone Age of mental health.) I am not going to delve deeply into these things, since you know all of them, and surely know more from your lengthy direct life experience, than I do from remembered ones of many, many years past. Of course, nowadays, the onset of these mental disorders is increasingly recognized as beginning quietly when children are very young. That is, it is now wondered if there is any such thing as teenage or adult onset, or even elderly onset, though, the depression aspect clearly shows there seems to be. I remember Richard Gere’s bipolar role in Mr. Jones and wonder what the character’s childhood life was like, thinking back to my uncle. In my own situation and awareness, I have to think hard, but I can recall the beginnings of the mood swings in my uncle when I was 7 or 8 years old and my uncle staying with my family when he was in his late teen’s. I see the what might have been the earliest recognition of his bipolar nature when he was really moody, pensive. What specifically brings my compassion out to you also hinges on the fact that I had an older uncle. That is, in the instance of the developmental consequences in David's personality -- as a result, and the massive compensations David makes under the circumstances. Certainly you have as much worried about Jim’s future as David’s and what holds forth in 25 to 30 years? If not, and it is not a simple extrapolation, then what is the issue? I mean that. We are the one creature who is able to examine futures like no other creature – and many think or suggest, this makes us the epitome and highest example of sensitive earth-life evolution. Perhaps that "sensitivity" and compasion or altruism is not the only issue. My older uncle tried very hard to care for his younger brother. He thought his younger brother would be able to do "fine" in the Navy, apart from him -- because the condition was not clearly recognized. The older uncle did when his younger brother was discharged from the Navy, leave the Air Force as soon as he could. It worked for a year. Then the younger uncle, took off. He eventually was incarcerated; Vagrancy. Phone calls connected my aunts and uncles, and the caretaker older uncle. But the state became involved, and the younger uncle was committed to the state mental hospital. None of the family could care for him. It took several years and medication. And in my post to LadyP's Shower Scene, I describe my Classes vist to the asylum. I knew my uncle had been placed there. No one else knew or could know. I hoped I would not see him, or he me and and recognize me. That did not happen. But this did. When ideas changed he was released, and given medication. His older brother had always been where he could reach him and again tried to love, protect and help his younger brother. But it did not work. This time when the younger brother gave up his medication, some lithium by then; the death by suicide of his younger brother took years for him to recover from -- if he has to this day. He always thinks "if I could have just been there." I have compassion for you and the situation, and especially for David. I am thankful we have progressed as far as we have and have drugs to do some limited treatment. My own experience was just to recognize that what you describe plays out somewhere in the future, and hope it works someway you can imagine it to work. I feel strongly all the emotions, and I know the joys but only from how the brothers were in my presence -- my uncles loved eachother, brotherly love.

Thanks Dragonfly. I can

Thanks Dragonfly. I can honestly say though, they've given us far more than we've given them. http://www.xomba.com/xombyte/thewonderer

PDD and Bipolar

This must be incredibly difficult and taxing for your entire family. I've such admiration for you for finding it in your heart to be parents to these boys, especially Jim, with all of his problems. I don't think there are many people who would be brave enough, patient enough, and so open-hearted to take something like this on. Blessings to you. Dragonfly Xomba Moderator

Dragonfly
Xomba Moderator

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